|When God allows a burden to be put upon you, he will put
his arms underneath you to help carry it.
|Brain tumors, like all tumors, fall into two broad categories, benign and malignant. A benign tumor is usually
contained and does not spread, but that doesn't mean it isn't dangerous. According to the Brain Tumor Society
(TBTS), brain tumors - even benign brain tumors - can recur and they can kill.
Welcome to Tommy's Wish Foundation.
It is what our son Tommy asked for, he survived a brain tumor.
How do you put down the first 15 years of Tommy's life with a brain tumor? You simply can't do it, it's too much
information. It was day to day living with it.
Tommy had a very rare tumor (ganglioglioma) likely from infancy to the age of 15 years old and it was slow growing
so therefore it was classified benign. For many years it looked like a cyst on CT Scans and MRI's. It was considered
inoperable for all those years, even with second opinions.
A few days before his 15th birthday he was very ill and his brain had become swollen. An MRI showed the tumor had
suddenly grew in size from an MRI done just several months earlier. An oncologist was called in and medication was
given to bring the swelling down so surgery could be done. His surgeon used a 3D imaging system that had came out
to guide him to the tumor that was deep in his brain. Technology had caught up with Tommy
and his slow growing tumor.
Tommy's tumor grew slowly all those years and then it viciously turned on him - WHY? We don't know. When he had
surgery you couldn't even find information on this tumor. Now we are beginning to find out more because research is
finding out more on pediatric brain tumors. Imagine fighting this battle with no information?
First he was though to have a cyst but after surgery it was a clear diagnosis of a tumor .
Tommy's Wish is this: that other children should not suffer as he did throughout his childhood because of illness.
Tommy had to take so many steroids for asthma and the illnesses that he encountered that his veins were difficult to
find for routine blood work, which most of the time was every week. IV's for CT Scans and MRI's required RN's
from the hospital. Tommy had bruises everywhere because of the routine blood work. At the age of 8 he stopped
breathing from a severe combination of seizures and asthma. He spent several days in the PICU with tubes
Tommy is a survivor. He still suffers from the effects of the brain tumor to this day.
He is legally blind due to losing his peripheral vision. He doesn't remember having full vision.
He is a wonder to many and a joy to be around.
Tommy's Wish is to raise money to help children who are ill. He also donates
for research to find out more about brain tumors.
In the past Math A Thons for St. Jude Children's Research Hospital were held.
Please join us for "Tommy's Wish"
God Bless You!!!
Tom & Sylvia Effler & "Tommy"
Founders of Tommy's Wish Foundation, Inc.